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[Medizinmann99]

Hello,

the original source of this information is:
http://p075.ezboard.com/fgilbertswebfrm3.showMessage?topicID=52.topic

Here is a copy:

-----------------------------------------------------
thread starter: mariusz
email: [email protected]
----------------------------------------------------
mariusz

Hi
I must share a good news with you peers.
I’m from Poland and I have GS and hemolysis (intrinsic membrane defect of red cells) so I have higher bilirubin count then you - 6.4mg (120mmol).
I’ve tried everything possible to low down my bilirubin and be less yellow – at last a little bit.
My eyes were really yellow without a bit of white. It was very nasty when people suspect me to have hepatitis didn’t want give me a hand and look at me strangly. As a result I stoped to socialize and closed myself in my house. I hated mirrors.
It was pretty hard to find some medication that you talked about here (problem to translate into polish adequate names).I’ve never managed to translate and get the SAM - “S-adenosyl-methionine” (combine of amino acid methionine with adenosyl-triphosphate (ATP)).
Lets go to the point:
I tried milk thistle and dandelion root – helps only for my abdominal pain
natural amino acids eg. “Amino 2000”-Ultimate Nutrition Corporation ( you can buy it in stores with body building supplements). It gets what we need: glutamine, glycine, taurine,cysteine, methionine etc. It is wanderful to give you a lot of energy and a little lower bilirubin.
I’ve never wanted to try phenobarbital and glutethimide – it lower bilirubin but side effects are more harmful then yellow eyes. Tin-protoporphyrin is probably really good without side effects but I have problem to find sth adequate or medication with it in Poland.
What we (with GS) need to get rid of bilirubin is more glucuronic acid produced by liver or medication with it – I ‘ve got problem to find sth that consist it – if you find please let me know. I tried lots more staff but wrote only about that with good effects.
The only thin that really works is “Pollen”- I’m sorry it’s a polish name. It droped my bilirubin from 6.4 to 2.8 !!!
I tried to find translation for it but I failed. I try to explain to you what it is:
It is not medication but dietetic article of consumption, it is consist of flower pollen. The product is close related to Royal Jelly –(it didn’t work noticebly for me).
Let me know if it works for you.
Please visit www.emedicine.com/MED/topic870.htm - about GS

-
mariusz

What I've taken is Pollen - the name is the same what it means in English.
To make it clear:

"Pollen - male generative element of seed plant. The shape of seed depends
on plant species, what can tell us about pollen derivation.
Pollen chemical composition depends not only on plant, but also on soil
fertility which is basic soil for a plant, on humidity and atmospheric
conditions during formulation and maturing of anthers. Pollen is obtain in a
pollen load form using special pollen traps, which are installed in hive
entrance.
Pollen content:
Chemical compound in % of different plant species.
Carbohydrates of pollen in 97% contain glucose, fructose, 3% residual are
vitamins, organic acids and amino acids. From 24 known amino acids in pollen
detected 20 of them. Floral pollen contains 36 bio-elements, which are
important ingredients of organism and which takes active role in it's
processes, for example Ca, Fe, Mg, Si, S, Cu, Br, Sr, Zn, Cr and others.
Average content of vitamins in floral pollen mixture.
Studies on pollen properties showed that it can be used in diabetics very
rich in vitamins, microelements and easy digestible protein resource. It
contain also some biological active agents. Consuming pollen in not large
amount is a good foodstuff, which improves good frame of mind and increases
body weight. Besides regulates intestines function in inflammation, helpful
during diarrhoea and obstruction. Pollen proofs clearly intellectually, what
is concerning with better blood supply. Pollen treatment gives positive
results in prostate gland inflammation. Antibiotics contain in pollen brakes
bacteria develop, particularly from Salmonella group, which are very
difficult to feight with another pharmaceutical preparations. "


Please visit the site of producer: www.apipol.com.pl/ang
-this is in English.
You can also order it (business info)-the price is aprox. 3 $ per packet (60
tablets).
Please let me know if you find any good article on internet on the pollen.

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 LennartII
GWMB Registered User
Posts: 1
(7/11/06 5:50 am)
Reply    New Post Re: It's working!!! i wonder if there's anyone else who tried? Seems like a treat(ment) to me!
The original link doesn't work anymore but I guess at present the link is:
http://www.apipol.com.pl/pages_ang/farma_dietetyczne_08.htm
Maybe Mariusz can confirm?
Anyone?

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berbanky
GWMB Power User
Posts: 121
(7/11/06 6:34 am)
Reply    New Post Re: It's working!!! Here's another product of theirs that is good for the liver and bile, increases production of red blood cells, and metabolic problems:

http://www.apipol.com.pl/pages_ang/apipol_products_03_3.htm

This might be impossible to try out though, as I dont see an online store, and they're located in.. Poland, I'm guessing?

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welshy0204
GWMB Registered User
Posts: 2
(7/20/06 3:50 pm)
Reply    New Post Re: It's working!!! I;ve found this site:

http://www.chainbridgehoney.co.uk/FISShop/ProductDetails.aspx?productID=44

I think it's the same thing.

It seems like a wonder-medication - one site is helps with Fatigue, works as an Antioxidant, aids digestion, and aids the liver:

http://www.abeeco.co.uk/structure/your-health.asp

The bee pollen seems worth a try and from what i gather is also organic from that site, they seem to offer a lot of products (not sure if they work or not) and prices vary from low - not so low. I shall order some bee pollen and keep y'all posted.

Hope this had been / will be of some help to you

Rod
-------------------

[Medizinmann99]

Update by medizinmann99:
In my opinion, this can mean two things:
a) Flower pollen generally works against GS for some unknown reason
b) Flower pollen helps especially against hemolysis (= enhances lifespan of red blood cells)
(or a mixture of both )

Both options are useful for GS sufferers, because even if b) is true, it is said that most GS sufferers have a mild form of hemolysis which also heightens bilirubine levels.

Therefore, flower pollen is probably useful for GS sufferers. In the german board, no one has tried it yet though.